Reaching the 'New Normal': A Wish for Breast Cancer Patients in Palliative Care
Downloads
More than 80% of breast cancer patients in Indonesia who are diagnosed are at an advanced stage. Advanced cancer treatment is directed at palliative care from the beginning of diagnosis. Patients undergoing palliative care must adjust to the changing needs that occur during palliative care in line with the decline in the condition of the disease and the impact of its treatment. It can affect changes in the patient's daily life patterns. This study was conducted to explore the unmet needs of breast cancer patients during palliative care in the context of the culture and healthcare system in Indonesia. This study utilized a descriptive qualitative phenomenological method. In-depth interviews with semi-structured interview guidelines were conducted on 14 breast cancer patients undergoing palliative care. The thematic analysis uses the Colaizzi approach. The results of this study obtained three specific themes of unmet needs in the study participants: 1) the need to achieve the 'New Normal' to return to activities with enthusiasm and hope, 2) the need for appreciation and recognition, and 3) Support to overcome the fear of death and the uncertainty of the future. Breast cancer patients want to return to their activities with enthusiasm and hope despite facing physical limitations and emotional challenges. In conclusion, achieving the 'New Normal' is an important aspect of this adjustment process, which involves physical, emotional, social, and spiritual support. This finding differs from previous research, where other publications did not explicitly mention the need to achieve the 'New Normal'. Therefore, the role of nurses in addressing unmet needs, both in the context of the 'New Normal' and more generally, is crucial in palliative care for breast cancer patients. This support enhances the patient's quality of life and gives greater meaning to the remainder of their lives.
Afolabi, O. A., Nkhoma, K., Maddocks, M., & Harding, R. (2021). What constitutes a palliative care need in people with serious illnesses across Africa? A mixed-methods systematic review of the concept and evidence. Palliative medicine, 35(6), 1052–1070. https://doi.org/10.1177/02692163211008784
Agustini, N. L. P. I. B., Satriani, N. L. A., Dewi, N. P. A. R., Yulistina, P. D., Dewi, P. S., Putra, P. A. S., ... & Yudha, G. K. E. (2023). Philosophy of Science on The Development of Palliative Nursing Practice in The Implementation of Long-Term Care for The Elderly: A Literature Review. Jurnal Info Kesehatan, 21(2), 226-238. https://doi.org/10.31965/infokes.Vol21.Iss2.1064
Alagizy, H. A., Soltan, M. R., Soliman, S. S., Hegazy, N. N., & Gohar, S. F. (2020). Anxiety, depression and perceived stress among breast cancer patients: single institute experience. Middle East Current Psychiatry, 27(1), 29. https://doi.org/10.1186/s43045-020-00036-x
Alligood, M. R. (2021). Nursing Theorists and Their Work. 10th Edition. Elsevier Inc.
Amalia, I. N., & Listia, M. (2020). Perawatan Paliatif terhadap Kualitas Hidup Pasien Kanker Payudara. Jurnal Keperawatan Silampari, 4(1), 281-292. https://doi.org/10.31539/jks.v4i1.1328
Anggorowati, A., & Ismail, S. (2023). Perawatan Spiritual pada Pasien Kanker Payudara. Jurnal Keperawatan Silampari, 6(2), 2024-2038. https://doi.org/10.31539/jks.v6i2.5150
Bouleuc, C., Burnod, A., Angellier, E., Massiani, M. A., Robin, M. L., Copel, L., Chvetzoff, G., Frasie, V., Fogliarini, A., & Vinant, P. (2019). Les soins palliatifs précoces et intégrés en oncologie [Early palliative care in oncology]. Bulletin du cancer, 106(9), 796–804. https://doi.org/10.1016/j.bulcan.2019.04.006
Curcio, F., El Khabir, H., Chelo, G., Puggioni, S., Soddu, M., Lucchetta, M. R., & Avilés-González, C. I. (2024). Transcultural Perspectives in Nursing: Understanding the Role of Healers and the Evil Eye in Modern Healthcare. Nurs Rep, 14(3), 2443-2455. https://doi.org/10.3390/nursrep14030181
Fatola, K. (2023). Culturally Sensitive Palliative Care and Beliefs about Dying [Internet]. Physiopedia. Retrieved from: https://www.physio-pedia.com/Culturally_Sensitive_Palliative_Care_and_Beliefs_about_Dying?veaction=edit
Flick, U. (2022). The SAGE Handbook of Qualitative Research Design. SAGE Publications Ltd. https://doi.org/10.4135/9781529770278
Forouzi, M. A., Tirgari, B., Safarizadeh, M. H., & Jahani, Y. (2017). Spiritual Needs and Quality of Life of Patients with Cancer. Indian J Palliat Care, 23(4), 437-444. https:doi.org/10.4103/ijpc.Ijpc_53_17
Gayatri, D., Efremov, L., Kantelhardt, E. J., & Mikolajczyk, R. (2021). Quality of life of cancer patients at palliative care units in developing countries: systematic review of the published literature. Qual Life Res, 30(2), 315-343. https://doi.org/10.1007/s11136-020-02633-z
Gouldthorpe, C., Power, J., Taylor, A., & Davies, A. (2023). Specialist Palliative Care for Patients with Cancer: More Than End-of-Life Care. Cancers, 15(14), 3551. https://doi.org/10.3390/cancers15143551
Hui, D., Heung, Y., & Bruera, E. (2022). Timely palliative care: personalizing the process of referral. Cancers, 14(4), 1047. https://doi.org/10.3390/cancers14041047
Hutajulu, S. H., Prabandari, Y. S., Bintoro, B. S., Wiranata, J. A., Widiastuti, M., Suryani, N. D., & Saptari, R. G. (2022). Delays in the presentation and diagnosis of women with breast cancer in Yogyakarta, Indonesia: A retrospective observational study. PLoS One, 17(1), e0262468. https://doi.org/10.1371/journal.pone.0262468
Jang, Y., & Jeong, Y. (2021). Unmet Needs and Quality of Life of Cancer Patients and Their Families: Actor-Partner Interdependence Modeling. Healthcare (Basel), 9(7), 874. https://doi.org/10.3390/healthcare9070874
Legese, B., Addissie, A., Gizaw, M., Tigneh, W., & Yilma, T. (2021). Information Needs of Breast Cancer Patients Attending Care at Tikur Anbessa Specialized Hospital: A Descriptive Study. Cancer Management and Research, 13, 277–286. https://doi.org/10.2147/CMAR.S264526
Lewandowska, A., Rudzki, G., Lewandowski, T., & Rudzki, S. (2021). The problems and needs of patients diagnosed with cancer and their caregivers. International journal of environmental research and public health, 18(1), 87. https://doi.org/10.3390/ijerph18010087
Lu, H., Xie, J., Gerido, L. H., Cheng, Y., Chen, Y., & Sun, L. (2020). Information needs of breast cancer patients: theory-generating meta-synthesis. Journal of medical Internet research, 22(7), e17907. https://doi.org/10.2196/17907
National Cancer Institute. (2025). Life After Cancer Treatment. National Cancer Institute. Retrieved from: https://www.cancer.gov/about-cancer/coping/survivorship/new-normal
Nuraini, T., Novieastari, E., & Yetti, K. (2019). Evaluation of nursing care behavior culture program’s implementation at Dharmais Cancer Hospital. ASEAN Journal of Community Engagement, 3(1), 51-71. https://doi.org/10.7454/ajce.v3i1.140
Praveena, K., & Sasikumar, S. (2021). Application of colaizzi’s method of data analysis in phenomenological research. Med Leg Updat, 21(2), 914-918. https://doi.org/10.37506/mlu.v21i2.2800
Rokom, R. (2024). Kanker Masih Membebani Dunia. Redaksi Sehat Negeriku. Retrieved from: https://sehatnegeriku.kemkes.go.id/baca/blog/20240506/3045408/kanker-masih-membebani-dunia/
Shah, S., Usman, A., Zaki, S., Qureshi, A., Lal, K., Uneeb, S. N., & Bari, N. (2023). The role of family and culture in the disclosure of bad news: A multicentre cross-sectional study in Pakistan. PEC Innovation, 3, 100200. https://doi.org/10.1016/j.pecinn.2023.100200
Sunilkumar, M. M., Finni, C. G., Lijimol, A. S., & Rajagopal, M. R. (2021). Health-Related Suffering and Palliative Care in Breast Cancer. Curr Breast Cancer Rep, 13(4), 241-246. https://doi.org/10.1007/s12609-021-00431-1
Surbakti, R. (2021). Peran perempuan sebagai anak, istri, dan ibu. Jurnal Kajian Gender dan Anak, 4(2), 123-136. https://doi.org/10.24952/gender.v4i2.3341
Symmons, S. M., Ryan, K., Aoun, S. M., Selman, L. E., Davies, A. N., Cornally, N., ... & Foley, G. (2023). Decision-making in palliative care: patient and family caregiver concordance and discordance—systematic review and narrative synthesis. BMJ supportive & palliative care, 13(4), 374-385. https://doi.org/10.1136/bmjspcare-2022-003525
Tampubolon, N. R., Fatimah, W. D., & Hidayati, A. U. N. (2021). Hambatan-Hambatan Implementasi Perawatan Paliatif di Indonesia: Systematic Review. Jurnal Kesehatan, 14(1), 1-10. https://doi.org/10.23917/jk.v14i1.12815
Tisnasari, I. A. M. A. S., Nuraini, T., & Afiyanti, Y. (2022). Stigma and discrimination against breast cancer survivors in Indonesia: an interpretive phenomenology study. Jurnal Ners, 17(2), 183-189. https://doi.org/10.20473/jn.v17i2.39448
Tisnasari, I., Nuraini, T., Afiyanti, Y., Rudi, R., & Maria, R. (2023). Psychological and sexual problems of cancer survivors. Archives of Italian Urology & Andrology/Archivio Italiano di Urologia Andrologia, 95(2), 98-107. https://doi.org/10.4081/aiua.2023.11473
Wahyuni, J. D., Yetti, K., Gayatri, D., Rachmawati, I. N., & Meidiawati, A. S. (2023). Komunikasi End of Life dengan Penyusunan Dokumen Wasiat Hidup: Qualitative Evidence Synthesis. Faletehan Health Journal, 10(03), 278-286. https://doi.org/10.33746/fhj.v10i03.640
Wang, Y., & Feng, W. (2022). Cancer-related psychosocial challenges. Gen Psychiatr, 35(5), e100871. https://doi.org/10.1136/gpsych-2022-100871
WHO. (2024). Breast Cancer. WHO. Retrieved from: https://www.who.int/news-room/fact-sheets/detail/breast-cancer
Zaccara, A. A. L., de Souza Batista, P. S., de Vasconcelos, M. F., de Oliveira Dias, K. C. C., de Aguiar, P. K. F., & da Costa, S. F. G. (2020). Contributions of the theory of the peaceful end of life to the nursing care for patients under palliative care/Contribuições da teoria final de vida pacífico para assistência de enfermagem ao paciente em cuidados paliativos. Revista de Pesquisa Cuidado é Fundamental Online, 12, 1247-1252. https://doi.org/10.9789/2175-5361.rpcfo.v12.9558
Zeilani, R. S., Abdalrahim, M. S., Hamash, K., & Albusoul, R. M. (2022). The experience of family support among patients newly diagnosed with cancer in Jordan. European Journal of Oncology Nursing, 60, 102173. https://doi.org/10.1016/j.ejon.2022.102173
Copyright (c) 2025 JURNAL INFO KESEHATAN

This work is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License.
Copyright notice
Ownership of copyright
The copyright in this website and the material on this website (including without limitation the text, computer code, artwork, photographs, images, music, audio material, video material and audio-visual material on this website) is owned by JURNAL INFO KESEHATAN and its licensors.
Copyright license
JURNAL INFO KESEHATAN grants to you a worldwide non-exclusive royalty-free revocable license to:
- view this website and the material on this website on a computer or mobile device via a web browser;
- copy and store this website and the material on this website in your web browser cache memory; and
- print pages from this website for your use.
- All articles published by JURNAL INFO KESEHATAN are licensed under the Creative Commons Attribution 4.0 International License. This permits anyone to copy, redistribute, remix, transmit and adapt the work provided the original work and source is appropriately cited.
JURNAL INFO KESEHATAN does not grant you any other rights in relation to this website or the material on this website. In other words, all other rights are reserved.
For the avoidance of doubt, you must not adapt, edit, change, transform, publish, republish, distribute, redistribute, broadcast, rebroadcast or show or play in public this website or the material on this website (in any form or media) without appropriately and conspicuously citing the original work and source or JURNAL INFO KESEHATAN prior written permission.
Permissions
You may request permission to use the copyright materials on this website by writing to jurnalinfokesehatan@gmail.com.
Enforcement of copyright
JURNAL INFO KESEHATAN takes the protection of its copyright very seriously.
If JURNAL INFO KESEHATAN discovers that you have used its copyright materials in contravention of the license above, JURNAL INFO KESEHATAN may bring legal proceedings against you seeking monetary damages and an injunction to stop you using those materials. You could also be ordered to pay legal costs.
If you become aware of any use of JURNAL INFO KESEHATAN copyright materials that contravenes or may contravene the license above, please report this by email to jurnalinfokesehatan@gmail.com
Infringing material
If you become aware of any material on the website that you believe infringes your or any other person's copyright, please report this by email to jurnalinfokesehatan@gmail.com.